Clinical trials organisations
This page has information about
Cancer Research UK
P.O. Box 123,
61, Lincoln's Inn Fields,
London,
WC2A 3PX
Website http://www.cancerresearchuk.org
Email supporter.services@cancer.org.uk
Phone 020 7242 0200
Cancer Research UK Information Nurses
Feedback form: Send a question about cancer
Phone: 020 7061 8355.
Cancer Research UK now manages and supports CancerHelp UK and is responsible for developing and maintaining our clinical trials database. You can ring the Cancer Research UK information nurses if you want to talk about clinical trials generally, or discuss any specific trial on our database.
Cancer Research UK was formed in February 2002 from the merger of The Cancer Research Campaign and The Imperial Cancer Research Fund. It is the foremost cancer charity in the UK and the largest cancer research organisation in the world, outside the USA.
It funds doctors and scientists in hospitals, medical schools, universities and research institutes across the UK. Cancer Research UK is the European leader in the development of new anti-cancer drugs. It funds research on all aspects of the disease from its causes to treatment and prevention, education and psychological support for patients.
The Drug Development Office at Cancer Research UK develops and assesses new treatments for patients with cancer.
Experimental Cancer Medicines Centre (ECMC) Network
The ECMC network is a joint project between Cancer Research UK and the Departments of Health in England, Scotland, Wales and Ireland. It is a network of 19 centres across the UK that are all involved with phase 1 clinical trials of experimental treatments.
The aim is to bring together laboratory and patient based research of new drugs and tests across the country. It is building on the work done by the National Translational Cancer Research Network (NTRAC), which ran from 2001 to 2006. The funding of the ECMC network starts in April 2007, and will run for 5 years.
Department of Health
Richmond House,
79, Whitehall,
London,
SW1A 2NL
Customer service phone line 0207 210 4850
Minicom line 0207 210 5025
Website http://www.dh.gov.uk/Home/fs/en
Email dhmail@dh.gsi.gov.uk
Department of Health, Social Services and Public Safety (Northern Ireland)
Castle Buildings
Stormont
Belfast
BT4 3SJ
Phone: 028 90520500
Website: http://www.dhsspsni.gov.uk
Email: A-Z list of email contacts on DHSSPS website
The DHSSPS responsibilities include reviewing all NICE guidance published from July 2006 and deciding whether it should be implemented in Northern Ireland. Also sometimes shortened to HPSS.
Medical Research Council (MRC)
20 Park Crescent,
London,
W1B 1AL
Website www.mrc.ac.uk
Phone 020 7636 5422
Fax 020 7436 6179
The Medical Research Council is a national organisation funded by the UK Government. They work closely with the Department of Health and other organisations and fund research in all areas of health care, including cancer.
National Cancer Research Network (NCRN)
NCRN Co-ordinating Centre
University of Leeds,
24 Hyde Terrace,
Leeds,
LS2 9LN
Website www.ncrn.org.uk
Email ncrn@cancermed.leeds.ac.uk
The National Cancer Research Network (NCRN) was set up by the Department of Health in April 2001 to support cancer research in the NHS. It aims to bring together and support cancer research undertaken by the major charities. This will hopefully improve the speed and quality of research in the UK for the benefit of people with cancer.
National Cancer Research Institute (NCRI)
PO Box 123,
61 Lincoln's Inn Fields,
London,
WC2A 3PX
Website www.ncri.org.uk
Email info@ncri.org.uk
Phone 020 7061 8460
Fax 020 7061 8461
The National Cancer Research Institute was set up alongside NCRN. This is a formal partnership of the UK's main cancer research funders: Cancer Research UK, the Medical Research Council, the Leukaemia Research Fund and the Department of Health.
Through NCRI, the main research organisations map out what they are all already doing and plan jointly for future cancer research. This means that NCRI can identify gaps in research and monitor the progress that is being made across cancer research initiatives in the UK.
National Health Service
Website http://www.nhs.uk/
This is the National Health Service website. You can search by country within the UK.
National Institute for Health and Clinical Excellence (NICE)
Mid City Place,
71, High Holborn,
London,
WC1V 6NA
Website http://www.nice.org.uk/
Email nice@nice.org.uk
Phone 0845 003 7780
Fax 0845 003 7784
NICE is an independent organisation responsible for providing guidance to the Government on the promotion of good health and the prevention and treatment of ill health in England and Wales. Once a drug has been licensed for use in the UK, NICE are responsible for assessing whether it should be available on the NHS. The equivalent function for Scotland is carried out by the Scottish Medicines Consortium (see below).
National Translational Cancer Research Network (NTRAC)
See information on the Experimental Cancer Medicines Centre (ECMC) Network above.
Northern Ireland Clinical Research Network
East Podium
Belfast City Hospital
Lisburn Road
Belfast
BT9 7AB
Phone: 02890 263903
The Northern Ireland Clinical Research Network (NICRN) for cancer is jointly funded by Cancer Research UK and the Northern Ireland Research and Development Office.
The NICRN was set up to give all patients in Northern Ireland equal access to a variety of clinical trials. To achieve this, the NICRN are in the process of recruiting dedicated clinical research nurses to support the running of cancer trials in the four cancer units in Northern Ireland. These are located at
- Altnagelvin Hospital, Londonderry
- Antrim Area Hospital, Antrim
- Craigavon Area Hospital, Craigavon
- Ulster Hospital, Dundonald
As well as working independently, the NICRN is part of the UK National Cancer Research Network (NCRN).
Scottish Cancer Research Network
The Scottish Cancer Research Network (SCRN) was established in 2003 with the aim of at least doubling patient recruitment into cancer clinical trials in Scotland. This target has already been achieved.
The SCRN is funded by 3 different parts of the Scottish NHS and government - Cancer in Scotland, the Chief Scientist Office and the ISD Cancer Programme.
The SCRN includes the ‘North Region’, ‘South East Region’ and ‘West Region’ cancer clinical networks. The SCRN is a member of the UK National Cancer Research Network. The contact details of the 3 regions can be found on the Scottish NHS website.
Scottish Medicines Consortium (SMC)
Delta House (8th floor),
50 West Nile Street,
Glasgow,
G1 2NP
Website http://www.scottishmedicines.org.uk/
Email qis.smcsecretariat@nhs.net
Phone 0141 225 6989
Fax 0141 248 3839
The Children's Cancer and Leukaemia Group (CCLG)
University of Leicester
3rd Floor, Hearts of Oak House
9 Princess Road West
Leicester
LE1 6TH
Website: www.cclg.org.uk
Email: info@cclg.org.uk
Phone: 0116 249 4460
Fax: 0116 254 9504
The UK Children's Cancer Study Group have merged with the Childhood Leukaemia Working Party to form a new organisation called the Children's Cancer and Leukaemia Group (CCLG). The CCLG co-ordinates all children's cancer trials in the UK, and some international trials. The UK trials take place in 22 specialised children’s cancer units around the country. Cancer Research UK is the main supporter of the CCLG.
The Health Technology Assessment (HTA) programme
Alpha House,
Enterprise Road,
Southampton science park,
Chilworth,
Southampton,
SO16 7NS
Website www.hta.nhsweb.nhs.uk
Email hta@hta.ac.uk
Phone 023 8059 5586
Fax 023 8059 5639
The Department of Health’s Research and Development programme funds the Health Technology Assessment programme. It is a national research programme that helps assess the NHS to see how good and how cost effective it is. The HTA funds research and clinical trials in all areas of healthcare including prevention, treatment and rehabilitation.
Wales Cancer Trials Network
Co-ordinating Office
3rd Floor
12 Cathedral Road
Cardiff
CF11 9LJ
Website: www.wctn.org.uk
Email: WCTN@velindre-tr.wales.nhs.uk
Phone: 02920 316241
The Wales Cancer Trials Network (WCTN) supports health care professionals who are carrying out research in Wales. It is funded by Cancer Research UK and the Welsh Assembly Government. It aims to promote research in the NHS in Wales, to make clinical trials more widely available in Welsh hospitals and so improve cancer treatments. The network offers information about cancer clinical trials taking place in centres across Wales to patients and their carers. Its research nurses provide support to patients and relatives as they take part in trials, whilst also coordinating their care.
The Wales Cancer Trials Network was set up in 1998. Since the creation of the National Cancer Research Network (NCRN) in 2001, the Wales Cancer Trials Network works closely with the NCRN, and recruits people on to the NCRN adopted trials.
Health talk Online website
The cancer section of this website contains video and audio clips of people with the main types of cancer, so that you can share in their stories. There is a section about taking part in clinical trials at www.healthtalkonline.org/medical_research/clinical_trials
European Organisation for Research and Treatment of Cancer (EORTC)
Avenue E. Mounier 83,
Box 11
B-1200 Brussels
Belgium
Website: www.eortc.be
Email: eortc@eortc.be
Phone: +32 2 774 16 11
The EORTC was founded in 1962 to improve the standard of cancer treatment in Europe. They fund laboratory research into cancer, including the development of new drugs. They also fund and co-ordinate a large number of clinical trials across Europe.
The European Group for Blood and Marrow Transplantation (EBMT)
EBMT Central Office
Dept. Haematology
MacDonald Buchanan Building
Middlesex Hospital
Mortimer Street
London
W1N 8AA
Website: www.ebmt.org
Email: admin@ebmit.org
Phone: 0207 380 9772
Fax: 0207 380 9597
The European Group for Blood and Marrow Transplantation (EBMT) started in 1974 in Holland. Their aim is to bring together doctors treating patients with bone marrow transplants, to share experiences and work together. They also fund research.
International Cancer Research Portfolio (ICRP)
Website: http://www.cancerportfolio.org/
NCI email: NCIICRP@mail.nih.gov
NCRI email: info@ncri.org.uk
The International Cancer Research Portfolio (ICRP) is a database of information about cancer research that is funded by organisations in both America and the UK. It was set up in 2003 to help researchers find information about current cancer research projects. Members of the public can also look at the information on the ICRP website. It is possible to search the database by type of cancer, area of research or funding organisation.
National Cancer Institute (NCI)
NCI Public Inquiries Office
Suite 3036A
6116 Executive Boulevard,
MSC8322 Bethesda,
MD 20892-8322
Website: www.nci.nih.gov
Phone: 1-800-4-CANCER (1-800-422-6237)
The National Cancer Institute (NCI) is an American organisation that carries out cancer research. They fund laboratory research and clinical trials for cancer patients in the US and around the world. They provide information about cancer and its treatments in English and Spanish.
There are organisations below that are involved in research for
Bowel (colorectal) Cancer
Digestive Disorders Foundation
3 St Andrews Place
London
NW1 4LB
Website: www.digestivedisorders.org.uk
Email: ddf@digestivedisorders.org.uk
Phone: 020 7486 0341
Fax: 020 7224 2012
The Digestive Disorders Foundation is a charity that supports research into a large range of digestive disorders, including cancer. They also produce information for patients.
The Bobby Moore Fund
Cancer Research UK
61 Lincoln’s Inn Fields
London
WC2A 3PX
Website: www.cancerresearchuk.org/getinvolved/events/bobbymoorefund/?version=1
Email: bmf@cancer.org.uk
Phone: 020 7269 3412
The Bobby Moore Fund raises money for research into bowel cancer. They aim to raise awareness of symptoms so that people are diagnosed earlier.
Brain Tumours
Brain Tumour UK
Tower House
Latimer Park
Chesham
HP5 1TU
Website: www.braintumouruk.org.uk/
Email: enquiries@braintumouruk.org.uk
Phone: 0845 4500 386
Fax: 0845 4500 386
This charity provides information, education and support for anybody concerned about brain tumours. They also raise funds for research and provide a telephone befriending service.
The Samantha Dickson Brain Tumour Trust
Saddlers House
100 Reading Road
Yately
Hampshire
GU46 7RX
Phone: 0845 130 9733
Fax: 0845 130 9744
Website: www.braintumourtrust.co.uk
Email: enquiries@sdbbt.co.uk
The Samantha Dickson Brain Tumour Trust (originally called the Samantha Dickson Research Trust) was set up in 1996, and they the largest single funder of lab based brain tumour research in the UK. They also provide support for families and patients who have been diagnosed with a brain tumour.
Breast Cancer
Breakthrough Breast Cancer
Weston House (3rd floor)
246, High Holborn,
London
WC1V 7EX
Website: www.breakthrough.org.uk
Email: info@breakthrough.org.uk
Phone: 020 7025 2400
Fax: 020 7025 2401
A UK-wide organisation that funds research into breast cancer and campaigns for better treatments and services. They have their own research centre within the Institute of Cancer Research in Sutton, Surrey.
Breast International Group (BIG)
B.I.G aisbl
Institut Jules Bordet
121 Blvd de Waterloo
7th Floor
B-1000 Brussels
Belgium
Website: www.breastinternationalgroup.org
Email: big@bordet.be
Phone: +32 2 541 3146
Fax: +32 2 541 3199
Breast International Group (BIG) was founded in 1996 by a group of breast cancer specialists. They share knowledge and information about research and clinical trials and aim to speed recruitment onto clinical trials. They fund and co-ordinate breast cancer trials.
Leukaemia
Leukaemia Research Fund (LRF)
43 Great Ormond Street
London
WC1N 3JJ
Website: www.leukaemia-research.org.uk
Email: info@lrf.org.uk
Phone: 020 7405 0101
Fax: 020 7405 3139
The Leukaemia Research Fund raises money for research into the causes and treatment of leukaemia, myeloma and lymphoma. LRF has a patient information service and produces booklets.
Lung Cancer
London Lung Cancer Group (LLCG)
CRUK and UCL Cancer Trials Centre
90 Tottenham Court Road
London
W1T 4TJ
Website - http://www.cancertrials.ctc.ucl.ac.uk/index.htm
Email: reception@ctc.ucl.ac.uk
Fax: 020 7679 9899
The London Lung Cancer Group is part of the Cancer Research UK and UCL trials centre, which was founded in 1997. They run clinical trials for lung cancer.
Roy Castle Lung Cancer Foundation
200, London Road,
Liverpool
Merseyside
L3 9TA
Website: www.roycastle.org
Email: foundation@roycastle.liv.ac.uk
Phone: 0871 220 5426
Fax: 0871 220 5427
This organisation, founded in Roy Castle's memory, is primarily dedicated to researching the early detection of lung cancer.
Lymphoma
Haematology Trials Group
CRUK and UCL Cancer Trials Centre
90 Tottenham Court Road
London W1T 4TJ
Website: www.ucl.ac.uk/cancertrials/
Phone: 020 7679 9860
Fax: 020 7679 8061
The Haematology Trials Group was formerly known as the British National Lymphoma Investigation. It is now part of the Cancer Research UK and University College London Cancer Trials Centre. The Cancer Trials Centre (CTC) was established in 1997 and is part of the Department of Oncology at University College London (UCL).
Myeloma
Myeloma UK (Previously the International Myeloma Foundation UK)
Broughton House
31 Dunedin Street
Edinburgh
EH7 4JE
Website: http://www.myeloma.org.uk
Email: myelomauk@myeloma.org.uk
Phone: 0131 557 3332
Freephone: 0800 980 3332
Fax: 0131 553 9785
Myeloma UK (Previously the International Myeloma Foundation UK) is dedicated to funding research, providing information and supporting patients with myeloma. They produce booklets, which are available on their website, or they will send you an information pack. They can provide a list of myeloma support groups in the UK.
UK Myeloma Forum
Administration Office
Clinical Trials Office
Dept of Haematology
Guy's Hospital
London
SE1 9RT
Website: www.ukmf.org.uk
Email: info@ukmf.org.uk
Tel 020 7955 2031
Fax 020 7955 4002
The UK Myeloma Forum (UKMF) develops and promotes clinical trials for myeloma. Their website has information about clinical trials that are taking place in the UK, and guidelines for the diagnosis and treatment of myeloma.
Prostate Cancer
The Prostate Cancer Charity
First Floor
Cambridge House
100 Cambridge Grove
Hammersmith
London
W6 0LE
Website: www.prostate-cancer.org.uk/
Helpline: 0800 074 8383
The Prostate Cancer Charity provides information and support for patients with prostate cancer. They have a helpline, produce leaflets and undertake research into prostate cancer.
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