Mesothelioma organisations
This page gives information about organisations and websites that help and support people with mesothelioma. There is information on
The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer 'pages' and fewer images than CancerHelp UK. When you go to any of these sites you will be leaving CancerHelp UK. To come back to CancerHelp UK you will need to use the BACK button or arrow at the top of your screen.
You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.
Cancer Research UK
P.O. Box 123
London
WC2A 3PX
Admin phone number: 020 7242 0200
http://www.cancerresearchuk.org
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our websites CancerHelp UK , News and resources and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning 020 7061 8355 or freephone 0808 800 40 40.
If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.
ADUK (Asbestos Disease UK)
26 Tollerton Green
Highbury Vale
Bulwell
Nottingham
NG6 9EX
Website: www.aduk.org.uk/index.php
Helpline: 0115 927 5108 (24 hours)
This is a self help, voluntary organisation, dedicated to helping people with asbestos related diseases.
British Lung Foundation
73-75 Goswell Road,
London
EC1V 7ER
Phone: 08458 50 50 20 (Helpline Mon to Fri, 10am to 6pm)
Website: www.lunguk.org/
Provides information, runs a helpline and support groups, and produces newsletters and publications. Also funds research into lung diseases. This charity is not just for people with mesothelioma or lung cancer.
British Thoracic Society
This organisation is a professional body for lung specialists. The website has information about lung cancers including mesothelioma and the investigations commonly used. It also has the BTS guidelines for the management of mesothelioma, published in 2007. Please note: this material is written for medical professionals and you may find the information written in a blunt and factual way.
Website: www.brit-thoracic.org.uk/
Health and Safety Executive
Caerphilly Business Park
Caerphilly
CF83 3GG
HSE Infoline: 0845 345 0055
Website: www.hse.gov.uk/
Produces a range of information on the use of asbestos in the workplace and about the legislation relating to asbestos. The Bootle information centre is open to personal callers, but the HSE do ask that everyone rings their helpline for advice. There are other regional offices throughout the UK.
June Hancock Mesothelioma Research Fund
This organisation raises money for research into mesothelioma treatment. Their website has some useful information about the financial and legal aspects of mesothelioma, including claiming state benefits.
Website: junehancockfund.org/index.htm
Mesothelioma UK
National Macmillan Mesothelioma Resource Centre
Hospital Management Offices
Glenfield Hospital
Groby Road
Leicester
LE3 9QP
Website: www.mesothelioma.uk.com/
Helpline: 0800 169 2409
Provides impartial up-to-date information about mesothelioma. Supports the development of specialist nursing practice and research. Queries to the helpline can be referred to a specialist mesothelioma nurse.
Ridings Asbestos Support and Awareness Group (RASAG)
50B Town Street
Armley
Leeds
LS13 3RW
Phone: 0113 231 1010 (Monday-Friday 10am - 4pm)
Website: www.asbestos-action.org.uk
Email: info@asbestos-action.org.uk
This organisation runs an information and support service and a website. The website has a forum for exchanging information with other patients and relatives. A specialist lung cancer nurse takes calls on the phone line on Tuesdays from 10am to 4pm. They produce a booklet and a newsletter, which you can order through the website.
Roy Castle Lung Cancer Foundation
Roy Castle Centre
4-6 Enterprise Way
Wavertree Tech Park
Liverpool
L13 1FB
Helpline telephone number: 0800 358 7200
Phone: 0151 254 7209
Email: foundation@roycastle.liv.ac.uk
Website: www.roycastle.org/
This organisation provides support and information and raises money for research into lung cancers. They have support groups around the country.
Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ
Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm; information available in other languages)
Textphone: 0808 808 0121
Email: cancerline@macmillan.org.uk
Website: www.macmillan.org.uk
Macmillan Cancer Support provides care and support for people with cancer at every stage of their illness through Macmillan nurses, Macmillan doctors, and a programme of financial help for patients in need. It offers information, advice and emotional support to cancer patients and their families. It has publications about the main types of cancer, treatments and ways of living with cancer. There is also a freephone telephone and letter information service, provided by a team of specialist cancer nurses, on all aspects of cancer and treatment. Their benefits advice line offers advice on financial matters generally
National Cancer Institute
This link will take you to the American National Cancer Institute's patient information on malignant mesothelioma. It is detailed and comprehensive but there are no images:
http://www.cancer.gov/cancerinfo/types/malignantmesothelioma
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